by Ellen Stumbo | Disability, Down Syndrome
After 6 days, we left Mayo’s hospital. The diagnosis was no more than an immature liver that was just taking a little bit longer to learn how to work. We had medicine and we would be back in 2 weeks to do more blood work. We drove back, happy to be making our way...
by Ellen Stumbo | Disability, Down Syndrome
Every test Nichole had at the hospital came back negative. Yet, one test would lead to other tests, as her blood work continued to show abnormal liver activity. During the following days, as we waited for Nichole’s several tests to be done, I became obsessed with...
by Ellen Stumbo | Disability, Down Syndrome
The doctor pocked and prodded Nichole. His forehead scrunched, and through the stethoscope he listened intently at Nichole’s belly. He examined the color of her skin and double-checked the daily blood results piled on his desk. Nichole was only 2 weeks old, and her...
by Ellen Stumbo | Disability, Down Syndrome
Pumping quickly became a time where I allowed for my emotions to surface. Eight times a day I was attached to my own machine, unable to move, and able to wallow in my sadness. Many times, while milk poured, so did my tears. At times, I felt as if I was shaking my fist...
by Ellen Stumbo | Disability, Down Syndrome
As we arrived home, a technician waited for us at the door. She was ready to show us how to use the billi blanket. I had not even walked inside my house, and the large piece of equipment confirmed the fact that my life had changed. I would go inside my house a...
by Ellen Stumbo | Down Syndrome
The hospital felt like a detention center. A detention center of the emotions I was trying to keep down, yet threatened to burst out in a display of fireworks. My mantra, “We belong together” was keeping the fuse unlit. On the other hand, the lack of a pump that had...