by Ellen Stumbo | Disability, Down Syndrome, This and That
I will start this post by saying I’m not a doctor, I cannot diagnose anyone with a gluten sensitivity, a thyroid issue, or sensory processing disorder. I’m not telling you about a cure, I’m just sharing our story, and how going on a gluten free diet saved my...
by Ellen Stumbo | Cerebral Palsy, Disability
She fell again. She falls often. She falls down and gets back up. This time – like many other times – she wasn’t thinking about walking or balancing, she was playing and squealing and laughing like little girls do when they play, and in keeping up...
by Ellen Stumbo | Down Syndrome, Faith
She walks to me and covers my mouth, a clear sign I’m not supposed to speak to her. “Mom. I luh you.” She waits a second, then she puts down her hand. “Thank you.” I say. “Hug?” She says, then hugs me tight, she lingers for a...
by Ellen Stumbo | Disability
Perhaps some of us who parent kids with disabilities have snapped, yelled, or given an angry lecture to friends or family, leaving them utterly confused about our behavior. Who can blame them for thinking, “Well that’s the last time I talk to her!”...
by Ellen Stumbo | Disability, Parenting
Dear Nichole, When you came into my life, your diagnosis of Down syndrome threatened to crush my heart. That tiny extra 21st chromosome seemed too powerful for me to stand up against. I cried constantly, and I feared our lives would be covered with limitations. I...
by Ellen Stumbo | Confessions, Disability, Parenting
It happens in the life of almost every parent who has a child with a disability, at some point we share a concern with a friend over what our child is doing — or not doing — and we’re met with the well intentioned, “Don’t worry about it,...